eISSN: 2354-0265
ISSN: 2353-6942
Health Problems of Civilization Physical activity: diseases and issues recognized by the WHO
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2/2024
vol. 18
 
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DISEASES AND PROBLEMS DISTINGUISHED BY WHO AND FAO
abstract:
Case report

NURSING CARE AND EDUCATION OF THE FAMILY OF A CHILD WITH DUCHENNE MUSCULAR DYSTROPHY

Stanisława Katarzyna Nazaruk
1
,
Anna Kulik
2
,
Barbara Sokołowska
3
,
Tamara Tkachuk
4
,
Katarzyna Sobieszczuk
3

  1. Department of Pedagogy, John Paul II University in Biała Podlaska, Poland
  2. Laboratory of Applied Cosmetology, Faculty in Biała Podlaska, Józef Piłsudski Academy of Physical Education in Warsaw, Poland
  3. Department of Nursing, John Paul II University in Biała Podlaska, Poland
  4. Department of World Literature and Comparative Literary Criticism, Vasyl Stefanyk Precarpathian National University, Ivano-Frankivsk, Ukraine
Health Prob Civil. 2024; 18(2): 164-173
Online publish date: 2023/12/18
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Some individuals suffer from a little-known, rare genetic disease called Duchenne muscular dystrophy. In Poland, approximately 40 boys are born with this condition every year. Therefore, paying attention to people with this rare disease was the motivation to undertake a qualitative study in order to identify the tasks of the nurse in terms of medical care and education of both the patient himself and his family, based on a case study. An interview technique, observation and analysis of medical records were used to develop the case study. As a result, the 2023 research material necessary for the case study was collected, which included: information on the patient’s medical history, observation of the patient, the problems faced each day, the planned goals of assistance, the nursing interventions and their evaluation, the time of their implementation and their effects. Based on the study, it should be concluded that caring for a person with Duchenne muscular dystrophy presents a number of challenges. In such a case, a holistic approach to the patient is required that encompasses all areas of life and all aspects of the disease. The nurse not only deals with medical problems, but also provides support with mental, social and spiritual problems. The patient also needs care and support from the family, and education is helpful in preparing them to fulfil these tasks.
keywords:

Duchenne muscular dystrophy, nurses, family, patient, care


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